The use of words

So because I am knew at this whole “special needs” thing, I think a lot about the words regarding her specialness. I was born in the 80′s when slang terms like idiot, moron, retarded were used as daily language. I knew those words came from people who had mental retardation but we never used those words directed at someone with that diagnosis. The words were used in daily banter.

Now that Ellye’s diagnosis is mental retardation, I feel like I’m saying a bad word. Even though, this is the diagnosis that her doctor used.

Now that I am a parent of a child who is developmentally delayed, I worry about people being mean to her and using words like those above to hurt her. I am hoping though that she won’t care because she’ll know she’s awesome anyways.

Do those words above (idiot, moron, retard) affect you in your life? Do you consider them bad words?

Mommy Milestone

I was tickling Ellye yesterday and I got a smile from her! I am so excited. I haven’t seen her do it again but I keep trying. She has a bit of a cold and has been having a hard time breathing through her nose.  It was a great day though! I have been wanting her to interact with me. I feel like she can’t really see me. She may be looking at me but she doesn’t really get excited or anything when she looks at me. I’m hoping that will change. Her adjusted age is 3 months (on Jan 13) I have no expectations just living day by day.

We have a vision therapist who has been trying to get her to follow objects and she says that she is a little slow with tracking. But each time she comes Ellye falls asleep. So we will see what she does this next week. She still has torticollis, I’m not sure if it will ever go away. We are trying to keep her on her belly more so that she gains the strength she needs. She appears to be trying to get stronger with her core muscles.

For some added therapy, music is supposed to be good for her. I would like to get a real piano for her. I wonder if that’s tax deductible? Sure would be nice. Brian set up his drums this weekend so I’m sure that’s not the “therapy” sounds we are looking for but she seems to be doing okay with the loudness in the house.

I am hosting a fundraiser! 10% of sales goes to NODCC.org – if you would like to shop please go to http://www.mythirtyone.com/kristycarr Go to My Events and shop under Lynne’s Fundraiser.

A New Blog Name for a New Year!

I had been thinking for a while about changing our blog name. We aren’t moving much anymore and our lives have changed since Ellye was born. It just made sense. I looked at the last 10 pages on the familyofmovers blog and realized, we hadn’t talked much about moving and pretty much everything was all [...]

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Confirmation of Ellye’s diagnosis

I was going to originally post on Facebook my status but I would be lying by pretending I wasn’t dealing with some emotions regarding Ellye’s confirmation appointment with her pediatric neurologist. We hadn’t talked to her neurolgist since her MRI while she was in the NICU and I was pretty much sick with worry when [...]

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Special People

You weren’t like other children,And God was well aware,You’d need a caring family,With love enough to share.And so He sent you to us,And much to our surprise,You haven’t been a challenge,But a blessing in disguise.Your winning smiles and laughter,The pleasures you impart,Far outweigh your special needs,And melt the coldest heart.We’re proud that we’ve been chosen,To [...]

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Family Photos!

Family Photo

We got our family pictures taken! And it’s my birthday so instead of blogging, I am going to just post our pictures! And if you are in the area and need a photographer, please check out Bamber Photography! 

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